Dear friends and colleagues, MLDA would like to share the 13th International symposium on MPS and related diseases, which will be held in Bahia, Brazil from 13 Aug to 17 Aug 2014.

By bringing patients, parents and families together with professionals, the symposium will be able to share information on all aspects of MPS and related disorders. The overall objective is to advance the quality of care and treatment. As well as musculoskeletal disease and MPS, the brain and MPS, and new approaches to treatment, the main topics of the symposium will be pricing and reimbursement. All will be covered in joint sessions attended by doctors, scientists, patients and patients’ families. Separately, doctors and scientists will also attend more detailed sessions on the CNS, bone disease and novel approaches to treatment.

Families will not only have opportunities to meet peers from other countries, but will be able to attend sessions on optimizing care, dealing with clinical issues and surgery in MPS, and ‘living fully with MPS’. Special activities will be organised for young patients and their siblings, who will be accompanied by trained volunteers.

If you are interested to join please contact us.