The Malaysia Lysosomal Diseases Association (MLDA) is a non- profit organisation which advocates for patients’ rights to a sustainable health care and support system. It also raises the awareness of the general public about the life threatening Lysosomal Storage Diseases.
There are about 50 different types of LSD diseases which mostly affect children who often die at a young and unpredictable age, many within a few months or years of birth.
Due to the complexity of LSD, patients will require care provided by health care professionals from multiple disciplines and support from various agencies. Access to such medical care and services are hard to come for many LSD patients, causing undue suffering and despair.
8 LSD families gathered on 1 April 2011 and decided they needed to strongly advocate for a sustainable healthcare system for their children whose lives are held by a shoestring. This decision resulted in the formation of the Malaysia Lysosomal Diseases Association.