The Every Life Counts Campaign was launched on the 25th of February, 2012 in conjunction with World Rare Disease Day. This is an MLDA Initiative to increase awareness of LSD and to garner the support of everyday Malaysians in our efforts to achieve our missions and goals.

This Campaign is based around the concept of signing up 10 000 people to become Friends of MLDA. These friends will then function as advocates and a support base for the Association to build upon. The idea to create this base came from the knowledge that alone these families do not have the necessary manpower or resources to reach people on a national level. The MLDA was aware that they needed to expand on the number of people capable of spreading their message and telling their story.

So what is the job of a Friend? It is simple really; the MLDA hopes their Friends will help spread the message of the MLDA and help campaign for the goals and mission of the Association. Some of the things we asked our Friends to do are:

  • Share the website or the Facebook page with your family, friends and colleagues.
  • Post the campaign banner on your website, Facebook or blog.
  • Invite MLDA to conduct a short interactive "Lunch Hour Awareness"
  • Campaign at your club, office or community organisation.
  • Host a movie night by screening “Extraordinary Measures” – a movie about LSD starring Harrison Ford, Brendan Fraser and Keri Russell.
  • Write an article about Lysosomal Disease and the children who suffer from it and post it on your website or blog.
  • Highlight the disease in your local paper or newsletter.
  • Organise a local campaign and we will come and support you.

It is the Association’s hope that with the support of these 10 000, and perhaps many more – we will be able to successfully provide all LSD patients and their families the support they need and truly deserve.

Ultimately the Every Life Counts Campaign works one crucial premise – “Alone we are rare; together we are strong”