Parent Blogs

Mrs Chia Kian Foon is the mother of two daughters who are suffering from a type of LSD called the Pompe. Follow this family journey as they face the daily challenges of living with LSD.

Pn. Nor Hayati is the mother of two girls – Adnin and Aqilah who are afflicted with the MPS IV A - Morquio Syndrome. Pn. Yati writes of the many highs and lows that they face as a family, follow their story here.