We are not alone ♥️
Attending 1 day sharing session on Pompe Disease Management workshop in Singapore with counterpart from other Asia representatives including Thailand, Singapore, Vietnam, Hong Kong and Taiwan. It's been a great learning session and kudos to their great achievement in gaining drug access.
Singapore has setup a Rare Disease fund with 70 mil seeds fund in July 19. Government making a pledge with 3 dollars for every 1 dollar donation. On top of that, donor can get 250% tax exemption! This is very good model for benchmarking.