[Lysosomal Diseases]
“Anisa acts like a normal little kid. She runs, jumps and dances.”-------mother of child with lysosomal disease.
Lysosomal disease is a rare, inherited and genetic disorder characterized by the deficiency of enzyme which helps to break down harmful substances in the body. As a result, the harmful substance will pile up in the body and cause harm to various organs.
The symptoms of lysosomal disease vary from patient to patient. Some children with lysosomal disease may look absolutely normal. They love freedom, playing, but they suffer from pains nobody knows after returning to home.
The infusions of artificial enzyme will cause by-effects, including fever, vomiting and headache. In order to live healthily and happily, they will have to bear the pains arising from the therapy.
Just like the Happy Prince in the Fairy Tales, tear slides down his cheek, but he was happy in heart.
【溶酶体疾病】
“安妮莎就像寻常孩子一般。她跑，她跳，她热爱舞蹈。”——来自一位溶酶体疾病患者的母亲。
溶酶体疾病是一种因体内缺乏分解毒素的酵素而导致的疾病。由于体内的毒素无法被分解，因此患者体内的毒素渐渐堆积，并危害各种器官。
溶酶体疾病在不同的病人身上有着不同的症状。有的孩子外表与平常孩童无异，他们热爱自由，玩耍，却在回家之后忍受着不为人知的痛苦。
现有的酵素疗程会产生副作用，包括发烧、呕吐、头痛等。为了能够健康快乐地生活着，患病的孩子必须承受疗程带来的副作用。
就像童话里的快乐王子一般，他虽然流泪，但却快乐着。