Izz Daniyal was diagnosed with Gaucher Disease on November 2017, when he was about 1 year old. People with Gaucher's ― which can manifest itself with fatigue, bruising, anemia, low blood platelets and an enlarged liver and spleen ― often are treated with drugs and bone marrow transplants but still face pain and often poor long-range health prospects.

“At first, we found that his urination frequency was less than normal, so we brought him to the clinic. When the doctor checked his bladder and found nothing wrong, but when the doctor checked his stomach, liver and spleen, they were enlarged. And the doctor at private hospital asked us to go to PPUM to check and do genetic tests. After roughly a year, we were able to diagnose him as a Gaucher Disease.” says Mr Tamizi, father of Izz Daniyal.

Because of its rarity, most of society are unaware of the Gaucher disease’s existence but this doesn’t lessen the impact and complications it has created for millions of patients out there. Izz Daniyal and the family joined MLDA to seek for support financially and mentally.

Mr Tarmizi hopes that Izz Daniyal will always stay healthy as the disease requires lifelong treatment and its cost is high. He also hopes that all parties will continue to provide funds and support Izz Daniyal and other rare disease children’s welfare and medication.

Check out the story of Izz Daniyal diagnosis and what are the hardships and challenges that the family had to deal with. Visit now: https://checkpointspot.asia/donation/miku-challenge